For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.
PodSkip has analyzed 1 episode of Untold Stories: Life with a Severe Autoimmune Condition, averaging 4.0 ads per episode (2% of runtime).
Alicia: The Long Road to Answers with Seronegative MG
Jun 17, 2026
Alicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as she explores how connection…
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Mel & Lindsay: Different Diagnoses. Shared Experiences.
Jun 02, 2026
Mel is a dancer living with CIDP. Lindsay is a writer living with dermatomyositis. In this episode, Martine Hackett explores how similar the emotional journey can feel as two people living with…
J’Sean: The Impact of MG with Ocular Symptoms
May 20, 2026
In the season premiere, J’Sean shares what it’s like to live with MG with ocular symptoms. Join Martine Hackett as she explores the real impact of ocular symptoms–– and how understanding that impact…
Untold Stories is back for Season 6!
May 13, 2026
Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward—against all odds. This season…
Brandon & Dr. Thawani: The power of shared-decisions
Dec 24, 2025
After a sudden change in mobility, Brandon Cutrell found himself on an unexpected path toward a CIDP diagnosis. That journey led him to build a remarkable partnership with his neurologist, Dr. Sujata…
Aging With an Autoimmune Disease
Dec 10, 2025
When Sandy was diagnosed with MG at age 60, she was forced to retire early, leaving behind the job she loved and facing her golden years with unanticipated hurdles. Now 15 years later, Sandy spends…
Adapting through Life’s Milestones
Nov 26, 2025
As Britt prepared to give birth to her first child, an unexpected CIDP diagnosis changed everything. Just like that, motherhood looked incredibly different than she had imagined. Hear how Britt…
Rediscovering Purpose
Nov 12, 2025
After closing her beloved yoga studio and losing her mother, Tanya Chiu was faced with a new challenge–she was diagnosed with myasthenia gravis. Her story is one of resilience, reclaiming purpose and…
Growing Through Setbacks
Oct 29, 2025
Trent was a new father when his life changed overnight, losing the ability to walk, speak or even lift a phone. He spent years in a wheelchair before finding his way back through sport and…
Untold Stories is back for Season Five
Oct 22, 2025
See omnystudio.com/listener for privacy information.
Community Support Across Borders
Oct 01, 2025
Lea was just 12 when her symptoms began, but six years passed before doctors finally gave her an MG diagnosis. In that time, she lost the ability to walk, speak, and swallow, yet never lost her…
Power in Community
Sep 17, 2025
Corbin is an engineer who faced a dual diagnosis with a 1.8% survival rate as a problem to solve. He didn’t see despair with that number - he saw a possibility. The possibility that, if he was able…
Understanding Cultural Differences
Sep 03, 2025
Leah is a Mexican American who experienced symptoms from slurring her words and choking on food with multiple doctors struggling to see the full picture. In this episode, hear how an MG crisis helped…
Navigating connection after diagnosis
Aug 20, 2025
Jamilah went from daily dance rehearsals to struggling to move through her own home, while her symptoms were continuously dismissed. In this episode, hear how finally getting a diagnosis changed…
Balancing caregiving with self-care
Aug 06, 2025
Justin is a husband, entrepreneur, and full-time caregiver to his wife, Shawna–– our very first podcast guest. In this episode, Justin talks about what it’s really like to care for someone you love…
Finding Your Voice In the Healthcare System
Jul 23, 2025
Jasmine is a career coach, wife, and mother who is newly diagnosed with CIDP but no stranger to fighting for her health. After years of navigating lupus and rheumatoid arthritis, Jasmine learned how…
Untold Stories is back for Season Four!
Jul 16, 2025
Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward against all odds. This season, we…
Harnessing Hope: Life Beyond Autoimmune Conditions
Oct 23, 2024
For this special season three finale, Martine is joined by Kathy Perez, Head of Global Patient Advocacy at argenx. They reflect on some of the most impactful and moving moments from guests this…
Pushing Past Grief: Staying Positive with MG
Oct 02, 2024
In 2007, Tony’s MG journey began with severe double vision, quickly leading to several episodes of pneumonia. He was in and out of the hospital and rehab facilities for many years, only reaching his…
Embracing Gratitude: Remaining Positive in the Face of CIDP
Sep 18, 2024
Craig’s CIDP journey began in college when growing symptoms and fatigue halted his running career and confined him to a cane, then a wheelchair. But from the very beginning, Craig remained positive…
Facing Frustration: The Hurdles of Life with CIDP
Sep 04, 2024
Beyond the unpredictable symptoms, Dana’s CIDP journey included misdiagnosis after misdiagnosis and many lessons in insurance coverage. All of which made frustration a frequent feeling. There are…
Building Confidence: Understanding Self-Worth with MG
Aug 07, 2024
Tasha has always faced life’s challenges head-on. Diagnosed with MG at the young age of 6, she quickly learned the importance of self-confidence. At 29, an MG crisis pushed her to manage her health…
Untold Stories will be right back!
Jun 26, 2024
We’re taking a quick break in the season and will be back soon with new episodes! In the meantime, if you haven’t done so already, don’t forget to check out some of the episodes from seasons one and…
Finding Resilience: Staying Strong with CIDP
Jun 12, 2024
Julie is no stranger to adversity. Diagnosed with CIDP at the age of 28, in the midst of motherhood and a full-time job as a special education teacher, Julie quickly found herself balancing it all…
Out of Loneliness: Finding Connection with MG
May 29, 2024
Morgan found herself grappling with many feelings of loneliness and self-doubt on top of the overwhelming physical symptoms of her MG. Diagnosed in her mid-twenties, it felt like everything Morgan…
Untold Stories is back for Season Three!
May 22, 2024
Martine Hackett returns with season three of “Untold Stories”! This time, she delves deeper than ever into the heart of what it’s like to live with conditions like myasthenia gravis (MG) and chronic…
Finding Your Pace: Building New Boundaries with MG
Feb 14, 2024
Raymond, a retired designer, lived with HIV for 40 years before the onset of his myasthenia gravis (MG) symptoms. As a longtime caregiver for his mother, he was no stranger to the hospital visits and…
Behind the Seams: Unraveling and Restitching Life with MG
Jan 31, 2024
Jacqueline, also known as Jacq, lived in New York City with big dreams of succeeding in the fashion industry. However, her life took a significant turn after she was diagnosed with myasthenia gravis…
Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment
Jan 17, 2024
As a successful and resilient attorney, Rorey was blindsided by the onset of debilitating muscle weakness and fatigue. After months of countless tests, he found a sense of relief when doctors…
Prioritizing Care: Confronting Postpartum with MG
Dec 27, 2023
Nicole is an epidemiologist whose life took an unexpected turn with an MG diagnosis between pregnancies. She had to prioritize how she cared for herself through postpartum depression, while also…
